Healthcare Self-Advocacy Support Group

Welcome to the Healthcare Self-Advocacy Support Group! 💜 Whether you have found your voice with your doctors or are still learning to speak up, your words have the power to help someone else. A question that made a difference could help another member advocate for themselves or a loved one. Start by introducing yourself: share what brought you here and one thing you have learned about speaking up. Please read the group rules, and remember we support each other as peers, not professionals. You are not alone here.

When I was diagnosed I had a face group member suggested to get genetic testing. Doctor was hesitant but complied with an attitude. Then when chemo was over I had my genetic results. I studied the meds for each marker. Doctor was going to do nothing. I told them I wanted to do atleast one maintenance drug to stop the cancer from growing. She didn't want to do it but I took my daughter in law who was a pharmacist. So she complied reluctantly. Later moved, had a doctor who left. New doc, ordered wrong test, then rescheduled wrong, when I had a bump like what I had the first time, she said put heat on it. I found a new doctor. Had it come back..fought va and cigna to get a cancer drug based on genetic test . 2 different drugs from 2 cancer genes. I am alive 5…